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Caregiving Resources

Information for family caregivers and those caring for aging or chronically ill adults

Caring for someone who is chronically or seriously ill.

A caregiver describes the challenges faced in for someone chronically ill - and the skills they need to do that job. While this person cares for someone with Myasthenia Gravis, his observations apply equally to other conditions.

No matter what the diagnosis, caring for anyone who is chronically ill includes:

  • caring for their emotional state  
  • caring for their their nutritional needs,
  • avoiding infections and injuries, and
  • paying attention to their overall wellness.

Easing pain, fatigue, nausea, and other discomforts - often grouped together under "palliative care" - can be crucially important to anyone who is seriously or chronically ill. 

Caring for someone with more than one health issue

What if there's more than one medical condition at the same time?

Often people to acquire chronic conditions as they age, some more troublesome than others. The U.S. National Council on Aging's top 10 list for 2023 was: 

Many seriously ill people (and many seniors) have more than one health issue at the same time - which makes it more complicated to care for them. Juggling medications, watching for drug interactions, prioritizing which condition to treat ... it's not easy!

These resources may help:

Autoimmune Diseases: Lupus, Rheumatoid Arthritis, ME/CFS/Fibromyalgia, Myositis

(Although there is some uncertainty over the causes of fibromyalgia, chronic fatigue syndrome, or myalgic encephalomyelitis, the needs of people with those syndromes are very similar to the needs of people with autoimmune diseases or immune dysfunctions.)

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